Fun loving: Rosie Kremer pictured at her
graduation from university of Cumbria in Health and Education in 2007,
she was working as a nursery nurse when she died
Doctors had insisted that Rosie Kremer, 24, had an inner ear infection despite suffering two months of agonising illness.
The nursery nurse lost two stone during her pregnancy, was violently sick, slurred her speech and started to lose coordination of her limbs.
Yet she says that at no point during the last two months of her life did any of the 23 doctors who saw her realise that she was gravely ill. Instead, they told her she had the condition labyrinthitis.
Her mother Lesley, 57, from Penrith, Cumbria, said she later learned that even an hour before her death Rosie could have made a full recovery if her condition had been correctly diagnosed and the fluid had been drained from her brain.
She is now suing North Cumbria University Hospitals NHS Trust, which manages Cumberland Hospital, in Carlisle.
Lesley, a part-time teacher, has spoken of her daughter’s plight in order to promote organ donation - Rosie helped save eight lives after her death.
In her honour Lesley is to attend a ceremony at St James’ Palace, London, to collect The Order of St John United Kingdom Award for Organ Donation.
Rosie, who lived in Penrith, began suffering a loss of appetite, headaches, dizziness and sickness, early on in pregnancy.
She was declared brain dead at 10.30am on 29 May 2012.
Less than six hours earlier, at 4.30am, doctors delivered her baby boy, who she’d already named Bobby Peter, at 29 weeks. He weighed 2lb 14oz.
Lesley said: 'The care she received was appalling. There was no joined up care. She was sent home twice from hospital.
'There was a note somewhere about cranial pressure, but despite all her symptoms nobody ever diagnosed a tumour. They weren’t looking at the overall picture.
Moving on: Lesley Kremer has stepped in to raise
her grandson Bobby, 15 month, after her daughter Rosie died from an
undiagnosed brain tumour just six hours after giving birth to him
Happier times: Rosie, left to right, with her mum Lesley and sisters Ruth and Jo on holiday in Lanzarote
'I just kept asking people to help her. She became a zombie, she said the pain was so bad she wanted to die.
Rosie spent the last five weeks of her life in bed, unable to sit up or use her hands.
A CT scan carried out after brain death revealed a very large brain stem tumour on the right side.
Lesley said: 'I honestly didn’t know what was the matter, but everyone seemed convinced she was just having a bad pregnancy.
'It didn’t have to kill her. If somebody had spotted it she would have been fine, she would have recovered.'
Lesley is now bringing up little Bobby as his legal guardian. Bobby’s dad had split from Rosie before he was born but sees him once a week.
The tragedy came 11 years after Rosie’s dad Peter, who coached and captained the rugby club in Kendal, died of cancer at the age of 44.
Tragedy: The loss of Rosie's father to cancer 11
years ago made his family aware of the importance of organ donation,
Rosie, pictured far left, saved the lives of eight people after her
death, with her mum, Lesley, Ruth, dad Peter, and sister Jo
Lesley said: 'Peter was very keen to donate, and we had talked about it with our daughters - Rosie, Ruth and Jo - when he knew he only had a couple of weeks to live.
'He had been in hospital quite a lot and had been on a ward where someone had died because it was too late to get a lung and heart transplant.
'He knew it was really important, and had said if anything happened to any of us we must donate.'
This meant that when Rosie died her Lesley knew she would have wanted to help others like her dad.
She added: 'I think she would be chuffed, and think it fabulous that someone was walking around with her heart.
'Her lungs were given to a young girl who would have died without them because it was her last chance.
'Appalling': Lesley Kremer says she was
disgusted by the treatment her daughter received at the hands of the 23
doctors who failed to spot that she had a huge brain tumour
Tragic loss: Rosie's mum Lesley claims she might
have made a full recovery if she had been diagnosed even up until the
last hour of her life but doctors missed vital signs
'She told me she was fine now, and that her family were so grateful.
'We have been told that all eight of the recipients are doing well.'
A spokesman for the Order of St John, the charity that created the new accolade, alongside NHS Blood and Transport, said: 'This award has been created for two purposes - to say thank-you to families whose loved ones have already donated, and to inspire more people to follow in their footsteps and sign up to be an organ donor.
'Around three people die every day due to the shortage of organs, and there are 10,000 people in the UK in need of a transplant.'
Lesley added: 'Organs get wasted because families are obviously shell-shocked after a death.
'Because we had already made up our minds, it was quicker and we kept Rosie on life support so that the nurses had time to check the organs and get them to the right people.
'It just takes five minutes to sign up and it is so, so important. You have to think, ‘what if I needed a lung, or a heart or something?’
To join the NHS organ donor register, visit www.organdonation.nhs.uk or call 0300 123 2323, or text SAVE 62323.
A spokesperson for North Cumbria University Hospitals NHS Trust said she was unable to comment on the case.
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